Building Health Literacy for Autistic & Neurodivergent People

Ways to Participate

What is this project about?

This activity is supported by funding from the Australian Government through Brisbane South Primary Health Network (PHN), to learn more about autistic and neurodivergent people's experiences navigating and accessing healthcare services.

Will I be paid?

Project participants will be entered into a draw to win one of three $50 Gift Cards.

What if I need help?

If you have any questions or would like help completing the survey, please contact us at:

CommunityInclusion@autismqld.com.au

07 3273 0000 (please ask to speak to someone from the Community Inclusion team)

Please select how you would like to participate:

I want to complete a short survey. I want to participate in an individual or small group engagement session (online or in person) about my experiences. I want to submit a creative expression about my experiences (e.g., drawing, written, short video, etc.).

CONSENT

AQ, with the support of Brisbane South PHN, is keen to hear about your experiences with healthcare services.

Before we connect with you, we need your consent to participate.

Consent means you are agreeing to participate.
It is completely up to you, and you can change your mind at any time.

All information you share in this survey will be confidential.

This means we will keep it safely.

We will keep your personal information private.

This means we will only share the information you tell us if you say we can or if the law says we have to.
Information you share will not impact any of the services or supports you currently access.
We will not share your contact details outside of the AQ project team and they will only be used to go into the draw to win 1 of 3 $50 Gift Cards.

If you have questions about privacy and consent, you can contact AQ:

07 3273 0000 (please ask to speak to someone from the Community Inclusion team)

CommunityInclusion@autismqld.com.au

I consent to participate in this Health Literacy project:

Yes, I consent

I confirm I have read and understood the Privacy Policy.

Yes, I have read and understood the Privacy Policy.

About the Survey

Who is this survey for?

Autistic and neurodivergent individuals, their family members, and caregivers living in, or accessing health services in, the Metro South region.
Metro South includes communities in Brisbane's southside - such as Carindale, Cleveland, Browns Plains, Mount Gravatt, Springwood, Logan, Redlands, Beaudesert and Scenic Rim (postcode ranges between 4000-4288 and 4160-4179).
For more information on the areas covered by Metro South, you can check their website: Hospital and health centres | Metro South Health.

This survey aims to find out about:

The barriers you face with finding and understanding information about your health.
Your experiences accessing and utilising healthcare services.
Your ideas for making healthcare services more accessible and inclusive for autistic and neurodivergent people.

How long will it take?

This survey will take about 15 minutes to complete.

There are 5 sections.

Some questions are optional, meaning you can choose whether to answer them.
Other questions must be answered before you can move on. These are marked with a red star (like this --> *)
You will find multiple-choice questions where you can select from different answers.
And other questions will be open ended where you can type your answer or ask someone to help you type.

At the bottom of each page of the survey, you will see a link to "Need Help? Click here" where you can get in touch with the project team.

We truly appreciate you taking the time to share your valuable insights for this project. Your input makes a difference!

Survey Participant Demographics

Section 1 of 5
The first few questions will help us to get to know you a bit better.

Are you completing this survey on behalf of someone else? (e.g., a parent completing it for your child or supporting a person to complete this survey?)

YesNoUnsure

If you are completing this survey on behalf of someone, please select which of the following best applies:

I am completing the survey questions, and the respondent is not present or involved.I am completing the survey with someone, and the answers represent their opinions and views.Other

Please explain:

Please select which of the following apply to you, or the person this survey is for (select all that apply):

Autistic personA parent/carer of an autistic childPsychosocial disabilityPhysical disabilityIntellectual disability/learning differencesLow vision/blindnessHearing loss/deafnessPrefer not to sayNone of the above

Postcode:

Which age group are you a part of? (For parents/carers, please select the age of the person this survey is for)

Under 18 years18-24 years25-39 years40-54 years55+ yearsPrefer not to say

Gender:

FemaleMaleNon-binaryPrefer not to sayOther

Participant Demographics

Section 1 of 5

The first few questions will help us to get to know you a bit better.

Please select which of the following apply to you (select all that apply):

Postcode:

Which age group are you a part of?

Under 18 years18-24 years25-39 years40-54 years55+ yearsPrefer not to say

Gender:

FemaleMaleNon-binaryPrefer not to sayOther

Survey Participant Diversity

Section 2 of 5

This section asks questions about who you are and diversity.

Do you, or the person this survey if for, identify as LGBTQIA+?

YesNoPrefer not to say

Do you, or the person this survey is for, identify as?

AboriginalTorres Strait IslanderNone of the abovePrefer not to say

Are you, or the person this survey is for, from an ethnically or linguistically diverse background (e.g., you may speak a language other than English as your first language?)

YesNoPrefer not to say

Participant Diversity

Section 2 of 5

This section asks questions about who you are and diversity.

Do you identify as LGBTQIA+?

YesNoPrefer not to say

Do you identify as?

AboriginalTorres Strait IslanderNone of the abovePrefer not to say

Are you from an ethnically or linguistically diverse background (e.g., you may speak a language other than English as your first language?)

YesNoPrefer not to say

Engagement Details & Availability

First Name:

Last Name:

Pronouns:

Email:

Daytime Phone:

Preferred Contact Method:

EmailPhone Call Text MessageOther

If other, please specify:

What type of engagement session would you like to attend?

Individual (one-on-one) Small group (3 - 6 participants max) No preference - happy to attend either individual or small group

Are you available to attend a small group engagement session online Wednesday 25th June at 4pm?

Yes, I'm availableNo, I'm not available at that timeI'm not sure

Please select when you are available during the week (select all that apply):

Early Morning 7am - 9amMid-Morning 9am - 11amLunch Time 11am - 1pm Early Afternoon 1pm - 3pmLate Afternoon 3pm - 5pmNone of the above

Comment:

Finding Health Information

Section 3 of 5

In this section, we will ask about how you find information related to your health needs.

Key Terms:

Health - How you feel in your body. This includes your physical, mental, and social well-being.

Healthcare Services - Any services, supports, or activities that you get from a healthcare professional to support your health. These services may help prevent problems, treat an illness or injury, promote wellbeing, or support your recovery.

Health Information - Anything related to your health. Health information may be written text, verbal explanations, images or videos, or other formats (e.g. prescriptions, medical letters, advice from your doctor, healthcare plans, online articles, etc.).

In the last 12 months, have you been to any of the following healthcare services? (select all that apply)

General Practitioner (GP) or Doctor ClinicDentistHospital Service or Emergency DepartmentUrgent Care ClinicMental Health Provider (e.g., psychologist, psychiatrist, counsellor, etc.) OptometristAllied Health Provider (e.g., occupational therapist, speech therapist, audiologist, physiotherapist, podiatrist, etc.) Pharmacy/ChemistNone of the aboveOther

In the last 12 months, how frequently have you accessed a Dentist?